{"id":582,"date":"2007-08-01T22:39:00","date_gmt":"2007-08-01T22:39:00","guid":{"rendered":"http:\/\/finnur.net\/blog\/?p=582"},"modified":"2007-08-01T22:39:00","modified_gmt":"2007-08-01T22:39:00","slug":"mjolkurdropar","status":"publish","type":"post","link":"https:\/\/hrefna.com\/blog\/2007\/08\/mjolkurdropar\/","title":{"rendered":"Mj\u00f3lkurdropar"},"content":{"rendered":"

[Bjarki started getting some milk again today, but only a tiiiiny bit. I think he’s getting 3 mL every 3 hours just to see how it goes but so far he’s been tolerating it ok. Today they also decided to put in a PICC line<\/a> since he’s been blowing through about one IV per day. He only has two days left on antibiotics, but it might take him a week or more to get back up to full milk feeds, and until then he needs IV nutrition, so they figured a PICC line would spare him being poked any more. And since his nose is getting a bit sore from the nose-prong CPAP, they changed him to a CPAP system that uses a tiny mask that covers the nose.<\/p>\n

The worst part about today was that I think I’m coming down with a sore throat so I won’t be able to visit him for a bit. That just kills me. (Actually, this whole “infection episode” had gotten me down more that I thought it would…) Finnur’s also been fighting something, and Anna’s had a mild cold for over two weeks, so the little guy will be “all alone” for a few days, but hopefully he won’t notice too much.<\/p>\n

We were busy on the paper-work front today. I called the breast-milk bank<\/a> to start the donation process. Apparently there are forms to fill out and a blood sample to give, but our freezer chest is almost full and I’ll either have to start dumping milk down the drain or giving it away. There are about 350 bottles of milk in there now, each containing up to 60 mL of milk. That’s a lot of milk. I must admit that I’ve been sad that Bjarki won’t be getting all of it, but I’ll just have to live with that.<\/p>\n

We also went to the Social Security<\/a> office to apply for something called “Supplemental Security Income” which Bjarki qualifies for since he was less then 1200 g when he was born. This entitles him to $263 per month while he’s in the hospital, and Medi-Cal<\/a> coverage which we’re hoping will pay for some of the medical costs that aren’t covered by Finnur’s insurance. Thankfully I think that our maximum out-of-pocket is $3000, and there’s no “lifetime maximum”, so it shouldn’t be that bad. But I’m sure glad we have insurance because I talked to Bjarki’s case manager the other day and she told me that his bill is now at $700,000 and rising fast!<\/p>\n

Now for Anna-news. She’s developing fast these days, talks non-stop and has entered the “funny” stage. She likes to make up words now and babble nonsense (funny!) and she’s trying to come to terms with time and sequences of events. The teachers say that she climbs everywhere and that she likes to play with a lot of different kids. They also note how cheerful she is, even when she’s being naughty! She seems to like sleeping in her room now, and so far she hasn’t figured out that she can still climb back into our bed. Instead she’s called for Finnur to come over a couple of times at 6am, which we think is a better solution in the long run then her coming over to us.<\/i>]<\/p>\n

Bjarki er aftur farinn a\u00f0 f\u00e1 mj\u00f3lk a\u00f0 bor\u00f0a, en bara \u00f6\u00f6\u00f6\u00f6rl\u00edti\u00f0 til a\u00f0 byrja me\u00f0. \u00c9g held a\u00f0 skammturinn \u00ed dag hafi veri\u00f0 3 mL \u00e1 \u00feriggja t\u00edma fresti. Svo var sett upp PICC l\u00edna<\/a> \u00fev\u00ed a\u00f0 \u00fe\u00f3 svo a\u00f0 hann eigi bara tvo daga eftir af s\u00fdklalyfjum, \u00fe\u00e1 er l\u00edklega r\u00fam vika \u00ed a\u00f0 hann fari a\u00f0 f\u00e1 fullan mj\u00f3lkurskammt (og \u00fea\u00f0 er bara ef allt gengur vel), og \u00feanga\u00f0 til \u00fearf hann n\u00e6ringu \u00ed \u00e6\u00f0. \u00cd g\u00e6r var svo skipt um nefp\u00fasts-kerfi \u00fev\u00ed nefi\u00f0 hans er or\u00f0i\u00f0 aumt eftir langa misnotkun og n\u00fa er hann me\u00f0 litla gr\u00edmu yfir nefi\u00f0 \u00ed sta\u00f0inn fyrir nasar\u00f6r.<\/p>\n

B\u00f6gg dagsins var a\u00f0 \u00e9g held a\u00f0 \u00e9g s\u00e9 a\u00f0 f\u00e1 h\u00e1lsb\u00f3lgu svo \u00e9g get ekki fari\u00f0 \u00ed heims\u00f3knir \u00e1 sp\u00edtalann (\u00fe\u00f3 svo \u00e9g hafi gert \u00fea\u00f0 \u00ed dag, og samstundist pirra\u00f0 alla upp \u00far sk\u00f3num). \u00c9g er n\u00fa heldur mi\u00f0ur m\u00edn yfir \u00fev\u00ed – og ver\u00f0 a\u00f0 vi\u00f0urkenna a\u00f0 \u00feetta s\u00fdkingarstand allt saman hefur fari\u00f0 verra me\u00f0 s\u00e1lartetri\u00f0 mitt en \u00e9g bj\u00f3st vi\u00f0. Finnur er l\u00edka b\u00fain a\u00f0 vera a\u00f0 berjast vi\u00f0 einhvern kverkask\u00edt og Anna S\u00f3lr\u00fan er b\u00fain a\u00f0 vera me\u00f0 v\u00e6gt kvef \u00ed r\u00famar tv\u00e6r vikur, svo greyi\u00f0 litli ma\u00f0urinn ver\u00f0ur bara a\u00f0 vera fj\u00f6lskyldulaus \u00ed einhverja daga \u00ed vi\u00f0b\u00f3t, en vonandi kemur \u00fea\u00f0 ekki a\u00f0 s\u00f6k.<\/p>\n

\u00deess fyrir utan st\u00f3\u00f0um vi\u00f0 \u00ed \u00fdmsu st\u00fassi. \u00c9g hringdi \u00ed brj\u00f3sta-mj\u00f3lkur-bankann (Gle\u00f0ibankann!) til a\u00f0 koma af sta\u00f0 gjafaferlinu. \u00c9g \u00fearf v\u00edst a\u00f0 fylla \u00fat form og gefa bl\u00f3\u00f0s\u00fdni en \u00fear sem a\u00f0 frystirinn er a\u00f0 fyllast, \u00fe\u00e1 \u00fearf \u00e9g anna\u00f0 hvort a\u00f0 fara a\u00f0 hella ni\u00f0ur mj\u00f3lk e\u00f0a gefa hana. Sem stendur er komnar um 350 litlar plastfl\u00f6skur (sem hver inniheldur allt a\u00f0 60 mL) \u00ed frystinn – \u00fea\u00f0 er frekar miki\u00f0 af mj\u00f3lk. \u00c9g er reyndar b\u00fain a\u00f0 vera nokku\u00f0 trist yfir \u00fev\u00ed a\u00f0 Bjarki f\u00e1i ekki alla mj\u00f3lkina, en \u00e9g ver\u00f0 bara a\u00f0 s\u00e6tta mig vi\u00f0 \u00fea\u00f0.<\/p>\n

Svo f\u00f3rum vi\u00f0 Finnur \u00e1 f\u00e9lagsm\u00e1laskrifstofuna \u00ed dag til a\u00f0 s\u00e6kja um eitthva\u00f0 sem heitir “Supplemental Security Income” og Bjarki \u00e1 r\u00e9tt \u00e1 a\u00f0 f\u00e1 \u00fev\u00ed hann var undir 1200 g vi\u00f0 f\u00e6\u00f0ingu. \u00de\u00e1 f\u00e6r hann $263 (16 \u00fe\u00fas) \u00e1 m\u00e1nu\u00f0i \u00e1 me\u00f0an hann er \u00e1 sp\u00edtalanum og svo f\u00e6r hann l\u00edka Medi-Cal tryggingu sem vi\u00f0 vonum a\u00f0 borgi eitthva\u00f0 af sp\u00edtalakostna\u00f0inum sem trygging hans Finns borgar ekki. Sem betur fer eigum vi\u00f0 ekki a\u00f0 eiga a\u00f0 borga meira en $3000 (200 \u00fe\u00fas), og \u00fea\u00f0 er ekkert \u00feak \u00e1 \u00fev\u00ed sem tryggining hans Finns borgar svo \u00feetta \u00e6tti ekki a\u00f0 vera svo sl\u00e6mt. En \u00e9g er ekkert sm\u00e1 fegin a\u00f0 vera me\u00f0 tryggingu, \u00fev\u00ed samkv\u00e6mt einni konunni sem \u00e9g tala\u00f0i vi\u00f0 um daginn \u00fe\u00e1 er reikningurinn kominn upp \u00ed $700 \u00fe\u00fas (43 millj\u00f3nir) og fer hratt h\u00e6kkandi! Ef \u00ed hart fer \u00fe\u00e1 erum vi\u00f0 trygg\u00f0 heima \u00e1 \u00cdslandi l\u00edka, en \u00e9g nenni helst ekki a\u00f0 standa \u00ed a\u00f0 f\u00e1 endurgrei\u00f0slu \u00fea\u00f0an.<\/p>\n

Og svo sm\u00e1 \u00d6nnu-fr\u00e9ttir \u00ed lokin. H\u00fan er heldur betur a\u00f0 \u00feroskast miki\u00f0 um \u00feessar mundir, talar \u00fat \u00ed eitt og er or\u00f0in svona l\u00edka fyndin a\u00f0 eigin mati. H\u00fan er farin a\u00f0 b\u00faa til bull-or\u00f0 og bullar \u00fat \u00ed eitt (fyndin!). Svo er h\u00fan alltaf a\u00f0 reyna a\u00f0 fatta t\u00edmann og \u00ed hva\u00f0a r\u00f6\u00f0 hlutir gerast (Hver elda\u00f0i \u00e1 me\u00f0an \u00e9g var \u00e1 leiksk\u00f3lanum?) Kennararnir segja a\u00f0 h\u00fan s\u00e9 algj\u00f6r klifruk\u00f6ttur og a\u00f0 h\u00fan leiki s\u00e9r vi\u00f0 marga mismunandi krakka. \u00deeir segja l\u00edka a\u00f0 h\u00fan s\u00e9 almennt \u00ed g\u00f3\u00f0u skapi, l\u00edka \u00feegar h\u00fan er \u00f3\u00feekk! \u00dea\u00f0 gengur vel a\u00f0 l\u00e1ta hana sofa \u00ed s\u00ednu eigin herbergi og vi\u00f0 erum fegin a\u00f0 h\u00fan vir\u00f0ist ekki hafa fatta\u00f0 a\u00f0 h\u00fan g\u00e6ti au\u00f0veldlega komi\u00f0 upp \u00ed til okkar. \u00cd sta\u00f0inn hefur h\u00fan tvisvar kalla\u00f0 \u00e1 pabba sinn (\u00e9g var a\u00f0 pumpa) \u00ed morguns\u00e1ri\u00f0 til a\u00f0 l\u00falla a\u00f0eins me\u00f0 s\u00e9r. \u00dea\u00f0 vir\u00f0ist vera \u00e1s\u00e6ttanlegri lausn en a\u00f0 h\u00fan komi til okkar \u00feegar til lengri t\u00edma er liti\u00f0.<\/p>\n","protected":false},"excerpt":{"rendered":"

[Bjarki started getting some milk again today, but only a tiiiiny bit. I think he’s getting 3 mL every 3 hours just to see how it goes but so far he’s been tolerating it ok. Today they also decided to put in a PICC line since he’s been blowing through about one IV per day.Read more<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-582","post","type-post","status-publish","format-standard","hentry","category-uncategorized","post-container col-md-12"],"_links":{"self":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/582","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/comments?post=582"}],"version-history":[{"count":0,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/582\/revisions"}],"wp:attachment":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/media?parent=582"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/categories?post=582"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/tags?post=582"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}