[Bjarki is two months old today. It’s kinda freaky how quickly time has passed, but at the same time, time hasn’t passed quickly enough, i.e. he’s still in the hospital and everybody keeps saying “He’ll grow out of (insert issue)”. Today though was the first day he was dressed in a shirt that we’d brought in to the hospital. It was an open (I don’t think they accept closed onesies in the NICU, I should ask) blue\/white striped long-sleeved shirt from grandma \u00c1sd\u00eds, and I kicked myself for not bringing the camera. Hopefully he’ll still be in it tomorrow!<\/p>\n
There’s been quite a lot of action at the hospital though. Mondays are “lab-days” where blood is drawn for all sorts of tests. They found Bjarki to be anemic enough to warrant a transfusion, which he got, so today he was a lot pinker, and quite a bit more energetic. He was also started on regular diuretics to help rid his lungs of extra fluids, but taken off the iron (constipating) and caffeine (reflux-inducing). Today was “eye-exam-day” so his pupils got dilated which he wasn’t all too happy about. They took a picture of the eye, and we’ll know the results tomorrow.<\/p>\n
Since the first anti-acid medicine hasn’t worked very well on his reflux (100 episodes in 24 hours = ouch!), they started him on another one, and added a very low dose of antibiotics which apparently speeds up the rate at which food leaves the stomach. They also reduced the oxygen flow he’s getting to 0.1 liter (maxed at 0.5), since they’ve determined that the flow rate does not reduce his “desats”.<\/p>\n
At noon I finally managed to complain bitterly to one of the nurse practitioners that the study he’s participating in (investigating the effect oxygen levels in the blood have on ROP, the eye-issue) is making the nurses tune down his oxygen just as soon as he settles into his “happy zone” of 94-96% blood oxygen saturation, thus contributing to his endless “desats”. This is because the study wants him at 88-92%, but Bjarki is an “all or nothing”-guy and if he’s not at 96%, he’s at 80% or below. He just doesn’t “do” 88-92%, except very briefly while moving between 96 and 80 or less. <\/p>\n
I think I threatened to take him off the study so they changed the acceptable values back to 85-95% (That’s the norm, they’d been trying 80-92% instead, don’t ask) which hopefully means the nurses will be less inclined to turn his oxygen down quite as low. But this stuff is hard to communicate, so we’ll just have to see how things go. At any rate, when I got to the hospital after a short shopping spree at the Great Mall (baby clothes!), his oxygen setting was such that he’d “desat” ever so briefly and then come right up again. This was a nice improvement over the past few days where he’s “desatted” down to 55-77% and stayed there for a while.<\/p>\n
Anyway, they’re trying all sorts of things to make Bjarki’s life better. The only problem is (and they know this) that they’re trying so many things at the same time, that it’s hard to figure out what is doing what. In the mean time we just have to wait until he “grows out of it”…<\/i>]<\/p>\n
Bjarki er 2ja m\u00e1na\u00f0a \u00ed dag. \u00dea\u00f0 er h\u00e1lf \u00f3tr\u00falegt hva\u00f0 t\u00edminn hefur li\u00f0i\u00f0 hratt, en samt hefur hann ekki li\u00f0i\u00f0 n\u00f3gu hratt \u00fev\u00ed Bjarki er enn\u00fe\u00e1 \u00e1 sp\u00edtalanum og ma\u00f0ur heyrir ekkert anna\u00f0 daglangt en “hann vex upp \u00far (vandam\u00e1li x)”. Dagurinn \u00ed dag var samt fyrsti dagurinn \u00fear sem hann var kl\u00e6ddur \u00ed f\u00f6t a\u00f0 heiman. Fyrir valinu var\u00f0 opin (\u00e9g \u00fearf a\u00f0 spyrja hvort hann megi fara \u00ed samfellu) bl\u00e1\/hv\u00edt r\u00f6nd\u00f3tt peysa fr\u00e1 \u00f6mmu \u00c1sd\u00edsi. \u00c9g var \u00fev\u00ed mi\u00f0ur ekki me\u00f0 myndav\u00e9lina, en vonandi ver\u00f0ur hann enn\u00fe\u00e1 \u00ed henni \u00e1 morgun.<\/p>\n
\u00dea\u00f0 er hins vegar \u00fdmislegt b\u00fai\u00f0 a\u00f0 gerast \u00e1 sp\u00edtalanum. \u00c1 m\u00e1nud\u00f6gum eru tekin bl\u00f3\u00f0s\u00fdni, og \u00ed g\u00e6r var lj\u00f3st a\u00f0 Bjarki var or\u00f0inn \u00fea\u00f0 bl\u00f3\u00f0laus a\u00f0 hann \u00feurfti bl\u00f3\u00f0gj\u00f6f, sem og hann f\u00e9kk. Hann var \u00fev\u00ed bleikari og orkumeiri \u00ed dag en oft \u00e1\u00f0ur. Hann var l\u00edka settur \u00e1 dagleg \u00fevagr\u00e6silyfi til a\u00f0 losa v\u00f6kva \u00far lungunum, en tekinn af j\u00e1rni (stemmandi) og koff\u00edni (v\u00e9lindabakfl\u00e6\u00f0is-valdandi). \u00cd dag voru svo teknar myndir af augunum \u00e1 honum og vi\u00f0 f\u00e1um a\u00f0 vita st\u00f6\u00f0una \u00e1 morgun.<\/p>\n
\u00dear sem a\u00f0 fyrsta magalyfi\u00f0 vir\u00f0ist ekki hafa virka\u00f0 n\u00f3gu vel til a\u00f0 draga \u00far brj\u00f3stsvi\u00f0anum sem 100 bakfl\u00e6\u00f0is-k\u00f6st \u00e1 dag valda, \u00fe\u00e1 var hann settur \u00e1 n\u00fdtt magalyf, og svo f\u00e6r hann n\u00fana \u00f6rl\u00edti\u00f0 af s\u00fdklalyfjum sem eiga v\u00edst a\u00f0 valda \u00fev\u00ed a\u00f0 maginn t\u00e6mist hra\u00f0ar. Svo var s\u00farefnisfl\u00e6\u00f0i\u00f0 minnka\u00f0 ni\u00f0ur \u00ed 0.1 (var mest 0.5) \u00fear sem \u00fea\u00f0 var nokku\u00f0 lj\u00f3st a\u00f0 meira fl\u00e6\u00f0i var ekki a\u00f0 minnka bl\u00f3\u00f0-s\u00farefnis-d\u00fdfurnar.<\/p>\n
Svo urra\u00f0i \u00e9g loksins \u00e1 yfir-hj\u00fakkuna \u00ed dag var\u00f0andi ranns\u00f3knina sem Bjarki er \u00fe\u00e1ttakandi \u00ed sem \u00e1 a\u00f0 athuga \u00e1hrif bl\u00f3\u00f0s\u00farefnis \u00e1 augnvandam\u00e1l fyrirbura. Ranns\u00f3knin segir til um a\u00f0 b\u00f6rnin eigi a\u00f0 f\u00e1 n\u00e6gilegt s\u00farefni til a\u00f0 halda \u00feeim \u00e1 bilinu 88-92% \u00ed bl\u00f3\u00f0s\u00farefnismettun, en gallinn er a\u00f0 \u00feegar Bjarka l\u00ed\u00f0ur vel \u00fe\u00e1 vill hann helst vera \u00e1 bilinu 94-96%. Ef honum l\u00ed\u00f0ur ekki vel (\u00fearf a\u00f0 k\u00faka e\u00f0a er me\u00f0 brj\u00f3stsvi\u00f0a) \u00fe\u00e1 hrynur hann ni\u00f0ur \u00ed 80% e\u00f0a ne\u00f0ar. Hann sum s\u00e9 vill ekkert hafa me\u00f0 \u00feetta 88-92% a\u00f0 gera nema \u00feegar hann er \u00e1 fer\u00f0inni \u00e1 milli 96% og undir 80%. Og \u00feegar hj\u00fakkurnar sj\u00e1 hann koma s\u00e9r \u00fe\u00e6gilega fyrir \u00ed 96% \u00fe\u00e1 l\u00e6kka \u00fe\u00e6r s\u00farefnismagni\u00f0 og \u00fe\u00e1 hrynur hann enn frekar!<\/p>\n
\u00c9g held a\u00f0 \u00e9g hafi h\u00f3ta\u00f0 \u00fev\u00ed a\u00f0 kippa honum \u00far ranns\u00f3kninni, en ni\u00f0ursta\u00f0an var\u00f0 amk s\u00fa a\u00f0 \u00e1s\u00e6ttanleg s\u00farefnisgildi eru n\u00fa 85-95% (\u00ed sta\u00f0 80-92%, l\u00f6ng saga) og vonandi \u00fe\u00fd\u00f0ir \u00fea\u00f0 a\u00f0 hj\u00fakkurnar s\u00e9u a\u00f0eins minna a\u00f0 draga \u00far s\u00farefninu. En \u00fea\u00f0 er erfitt a\u00f0 koma svona uppl\u00fdsingum \u00e1fram (a\u00f0 vera ekki of spar \u00e1 s\u00farefni\u00f0), og \u00fev\u00ed ver\u00f0um vi\u00f0 a\u00f0 b\u00ed\u00f0a og sj\u00e1 hva\u00f0 gerist. En \u00feegar \u00e9g kom \u00far verslunarfer\u00f0inni \u00ed Great Mall \u00ed dag, \u00fe\u00e1 var s\u00farefni\u00f0 enn\u00fe\u00e1 \u00feannig a\u00f0 \u00feegar hann f\u00e9kk magauppgang \u00fe\u00e1 hrundi hann en kom sn\u00f6gglega upp aftur, sem var miki\u00f0 betra en um h\u00e1degi\u00f0 \u00ed dag.<\/p>\n
Hva\u00f0 um \u00fea\u00f0. \u00dea\u00f0 er veri\u00f0 a\u00f0 reyna alls konar hluti til a\u00f0 Bjarka Frey l\u00ed\u00f0i betur. Gallinn er bara s\u00e1 (og \u00feau \u00e1 sp\u00edtalanum eru me\u00f0vitu\u00f0 um \u00feetta) a\u00f0 \u00fea\u00f0 er veri\u00f0 a\u00f0 reyna svo margt \u00ed einu a\u00f0 \u00fea\u00f0 er erfitt a\u00f0 vita hva\u00f0 virkar hvernig. \u00c1 me\u00f0an er l\u00edti\u00f0 h\u00e6gt a\u00f0 gera nema b\u00ed\u00f0a eftir a\u00f0 hann “vaxi upp \u00far \u00feessu”…<\/p>\n","protected":false},"excerpt":{"rendered":"
[Bjarki is two months old today. It’s kinda freaky how quickly time has passed, but at the same time, time hasn’t passed quickly enough, i.e. he’s still in the hospital and everybody keeps saying “He’ll grow out of (insert issue)”. Today though was the first day he was dressed in a shirt that we’d broughtRead more<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-559","post","type-post","status-publish","format-standard","hentry","category-uncategorized","post-container col-md-12"],"_links":{"self":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/559","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/comments?post=559"}],"version-history":[{"count":0,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/559\/revisions"}],"wp:attachment":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/media?parent=559"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/categories?post=559"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/tags?post=559"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}