{"id":497,"date":"2007-12-05T17:10:00","date_gmt":"2007-12-05T17:10:00","guid":{"rendered":"http:\/\/finnur.net\/blog\/?p=497"},"modified":"2007-12-05T17:10:00","modified_gmt":"2007-12-05T17:10:00","slug":"b%c3%a6b%c3%a6-surefni","status":"publish","type":"post","link":"https:\/\/hrefna.com\/blog\/2007\/12\/b%c3%a6b%c3%a6-surefni\/","title":{"rendered":"B\u00e6b\u00e6 s\u00farefni"},"content":{"rendered":"

[A momentous day… We’ve been given the official OK to discontinue the supplemental oxygen for Bjarki!! \ud83d\ude42 A lady from Apria<\/a> finally came yesterday with the equipment we needed to do an overnight O2 blood-saturation test. Annoyingly, the test was ordered on Nov 12th, and it should have happened a week later, i.e. on the Monday before Thanksgiving. Instead, the respiratory therapist (RT) at the Menlo Park Apria branch came by and declared he didn’t have the correct probe to hook up to the equipment, and so he couldn’t do the test.<\/p>\n

I asked him if any other Apria branches in the Bay Area would have it, and he said no. So off he went and promised to be in touch. Well, a week later I called again to get a status on the probe, and the guy said “up to 2 weeks”. To try and press the matter I called Apria again a week later, and finally talked to the only person at that branch who seems to know what she is doing. She was appalled at how long we’d waited, and lo and behold, five minutes later a lady from the San Jose branch called to schedule the equipment drop-off the next day.<\/p>\n

So we did the test last night, and today the Dr. called and told me that Bjarki’s sat-levels looked pretty good and that they generally stay in the high-90s when he sleeps. He therefore recommended that we discontinue the supplemental oxygen, but also warned me that Bjarki might go back on it if he gets a bad cold or gets sick and doesn’t seem to be able to get better in a reasonable amount of time.<\/p>\n

In January we’ll go see the lung doctor again, and see how Bjarki’s doing. The big question is whether he can sustain weight gain off of the oxygen. The tricky trade-off is that if he has to spend too much energy keeping his blood saturation up (by breathing quickly for example), then he has less energy to devote to growing and getting bigger. His pediatrician wasn’t thrilled with his weigh-gain last time we saw her, so that remains an issue.<\/p>\n

Other than that, not much to report, except that December is already here, much to my surprise. I wish I were further along with work, but Bjarki’s not been cooperating lately so not much has gotten done. Add to that a nasty head-cold and home-sickness and Hrefna’s not been the happiest of campers… \ud83d\ude09 But getting rid of the oxygen is huge, and now I feel much freer to leave the house than before.<\/i>]<\/p>\n

H\u00e6h\u00f3-og-jibb\u00ed\u00ed-jei-og-jibb\u00ed\u00ed\u00ediii-jei… Bjarki m\u00e1 h\u00e6tta \u00e1 s\u00farefninu!! \ud83d\ude42 L\u00e6knirinn var a\u00f0 hringja og sta\u00f0festa a\u00f0 s\u00farefnismagni\u00f0 \u00ed bl\u00f3\u00f0 Bjarka \u00e1n auka-s\u00farefnis hafi veri\u00f0 \u00e1s\u00e6ttanlegt, og \u00fev\u00ed megum vi\u00f0 h\u00e6tta a\u00f0 nota &#&”!#! nefr\u00f6ri\u00f0. \u00dea\u00f0 t\u00f3k annars t\u00edmana tvo a\u00f0 f\u00e1 \u00feetta blessa\u00f0a n\u00e6turpr\u00f3f framkv\u00e6mt, \u00fev\u00ed g\u00e6inn hj\u00e1 s\u00farefnisfyrirt\u00e6kinu \u00e1tti ekki r\u00e9ttan skynjara og \u00fe\u00f3ttist ekki geta fengi\u00f0 \u00fea\u00f0 innan tveggja vikna. <\/p>\n

\u00cd g\u00e6r n\u00e1\u00f0i \u00e9g hins vegar loksins \u00ed manneskju hj\u00e1 s\u00farefnisfyrirt\u00e6kinu sem vissi hva\u00f0 h\u00fan var a\u00f0 gera, og fimm m\u00edn\u00fatum s\u00ed\u00f0ar var b\u00fai\u00f0 a\u00f0 l\u00e1ta okkur vita a\u00f0 vi\u00f0 fengjum gr\u00e6juna daginn eftir. \u00cd n\u00f3tt sv\u00e1fum vi\u00f0 svo me\u00f0 l\u00edti\u00f0 t\u00e6ki \u00ed r\u00faminu (\u00e1 vi\u00f0 tvo fars\u00edma \u00e1 st\u00e6r\u00f0) og svo kom kona og n\u00e1\u00f0i \u00ed gr\u00e6juna \u00ed morgun. G\u00f6gnin voru svo sko\u00f0u\u00f0 \u00ed dag og l\u00e6knirinn gaf okkur gr\u00e6nt lj\u00f3s “fyrir lokun” ef svo m\u00e1 a\u00f0 or\u00f0i komast… \ud83d\ude42<\/p>\n

Vi\u00f0 vorum samt v\u00f6ru\u00f0 vi\u00f0 \u00fev\u00ed a\u00f0 ef Bjarki f\u00e6r sl\u00e6mt kvef e\u00f0a ver\u00f0ur veikur og \u00e1 erfitt me\u00f0 a\u00f0 komast yfir veikindin, \u00fe\u00e1 g\u00e6ti hann \u00feurft s\u00farefni\u00f0 aftur. Svo \u00fearf a\u00f0 fylgjast me\u00f0 \u00fev\u00ed a\u00f0 hann vaxi og \u00feyngist e\u00f0lilega, \u00fev\u00ed \u00fea\u00f0 er sm\u00e1 h\u00e6tta \u00e1 a\u00f0 hann ey\u00f0i of mikilli orku \u00ed a\u00f0 halda s\u00farefnismagninu uppi (andi t.d. of hratt). N\u00e6sti t\u00edmi hj\u00e1 lungnal\u00e6kninum ver\u00f0ur \u00ed jan\u00faar.<\/p>\n

Hva\u00f0 um \u00fea\u00f0. Annars ekki miki\u00f0 a\u00f0 fr\u00e9tta nema a\u00f0 \u00fea\u00f0 er allt \u00ed einu kominn desember og \u00e9g er ekki b\u00fain a\u00f0 koma n\u00f3gu miklu vinnud\u00f3ti \u00ed verk. B\u00e6\u00f0i er Bjarki b\u00fainn a\u00f0 vera \u00f3samvinnu\u00fe\u00fd\u00f0ur og ekki sofi\u00f0 eins vel \u00e1 daginn og oft \u00e1\u00f0ur, og ofan \u00e1 \u00fea\u00f0 hef \u00e9g veri\u00f0 me\u00f0 kvef (sem er loksins a\u00f0eins a\u00f0 lagast) og undir ni\u00f0ri kraumar heim\u00fer\u00e1in… <\/p>\n



\u00d6r-bros.<\/p>\n


Anna auga\u00f0 \u00ed pung.<\/p>\n


\u00deetta er mynd 87 af 126…<\/p>\n


Einn svoldi\u00f0 rangeygur!<\/p>\n


\u00d3, vondi heimur!!<\/p>\n

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[A momentous day… We’ve been given the official OK to discontinue the supplemental oxygen for Bjarki!! \ud83d\ude42 A lady from Apria finally came yesterday with the equipment we needed to do an overnight O2 blood-saturation test. Annoyingly, the test was ordered on Nov 12th, and it should have happened a week later, i.e. on theRead more<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-497","post","type-post","status-publish","format-standard","hentry","category-uncategorized","post-container col-md-12"],"_links":{"self":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/497","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/comments?post=497"}],"version-history":[{"count":0,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/posts\/497\/revisions"}],"wp:attachment":[{"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/media?parent=497"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/categories?post=497"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hrefna.com\/blog\/wp-json\/wp\/v2\/tags?post=497"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}